Dangers of numb fingers

I cut my knuckle the other night on a tin can. The worse part was I barely felt it. I just happened to look down and see blood dripping down my finger. Thanks to Syringomyelia, I have limited sensation in my right hand. It is much better than it had been 5 or so years ago when I had nothing at all- no sensation and no function. Before my last surgery in 2001, the numbness extended up my arm and across my chest. I also had small pockets of numbness in random places on my back and toes. I was a little worried when the cut wouldn't stop bleeding. I didn't want to go to the ER- plus it was dark out and I don't drive in the dark.....blah, blah. It eventually stopped bleeding until I accidentally hit into something and then it was back to my impersonation of the Statue of Liberty and a whole bunch of band aids. I think I will live- just won't be eating anything from a tin can for awhile!

Living Alone

Before I became disabled I very happily lived by myself. I have always prided myself on my independence and hated to ask anyone for help. Of course back then there was very little I actually needed help with.

After each of my three surgeries, I became completely dependent. I gave up my apartment and moved back with my parents. After surgery #1 in 1999 I was in a large brace for 7 months and was limited in what I could do for myself. After surgeries #2 and #3 I lost the use and feeling in my right hand and arm (my dominant hand). I couldn't even tie my own shoes! I hated it and tried to find ways around it all- I became left handed for two years and used adaptive devices whenever I couldn't figure out how to make it work for me.

Now that I am on my own again I actually miss having the help! (shhh don't tell anyone) Don't get me wrong, I love having my independence back but every once in awhile I could really use the help. Carrying in heavy items from my car (When I try my neck goes into spasm and I end up in bed for days), digging my car out after a snow storm(This I have no choice. I wear my neck brace under my scarf, take my time, and take a motrin and a nap when I am done), When I lose power and everything is dark and cold (Lose my equilibrium in the dark and fall right over. Always fun finding the flashlight!) etc....

I guess that I am still adjusting to life on my own with a disability. I knew it would be a challenge but I know I can make it work. Besides my family is only 30 minutes away so if I really need the help I can get it. I just have to learn how to ask!

Happy Holidays

I had my family over on Christmas for brunch. It was my first time holiday hosting in my new home. Although it was a small gathering it was fun. I even used the good dishes! Everything turned out really well- even the food. Everyone survived my cooking and took home leftovers so I guess it was a success! I of course was exhausted after and had to take a nap but it was well worth it. I never thought I would have my own home, let alone be a hostess!